Media Release

Evidence-based approach to Fed Govt’s Thriving Kids initiative crucial to ensure no kid is left behind: experts

A coordinated, equitable and evidence-based approach to supporting children with developmental delays and disability is needed to ensure no child is left behind, the National Centre of Excellence in Intellectual Disability Health has told the Parliamentary Inquiry into the Australian Government's Thriving Kids initiative.

Appearing before the Inquiry yesterday, Professor Jenny Downs, representing the Centre, said success of the government’s initiative will depend on building a system that is both evidence-based and consumer-informed - and one that strengthens the capacity of families, health professionals and local communities.

Prof Downs called for adequate funding to existing state-based supports, including in the education sector, and emphasised the need for continuity of care as children move through key transition points.

"Children and families need access to supports that are equitable, enabling and coordinated across sectors," Prof Downs said.

"We have an opportunity to build a truly national model that champions inclusion, participation and quality of life - but it must be grounded in strong evidence and real-world experience.

“We also need to make sure agility is built into the initiative, so that it provides the right support to kids with intellectual disability as they grow and move between different services."

In her address, Prof Downs proposed a cross-sectoral and stepped-care model that is:

• Evidence based and consumer informed
• Equitable
• Enabling family and health professional capacity building
• Builds on existing programs and supports - and makes sure they’re adequately resourced
• Embedded in community, education and in local primary health networks
• Champions inclusion, participation, and quality of life
• Coordinated effectively across health, disability, education and social service sectors
• Agile and best supports for children at key transition points as they arise

Prof Downs said genuine collaboration between governments, services and communities will be essential if the Thriving Kids initiative is to deliver on its promise to Australian kids and families.

"If we get this right, we can build a sustainable, inclusive system that helps every child reach their full potential," she said.

Media contact: Alana Mew - 0419 929 722