Understanding Prader-Willi Syndrome: Implications for Intervention and Support", Professor Holland (Cambridge)
We hosted an event with Professor Tony Holland (Cambridge) on 2 September 2026.
Professor Tony Holland is an internationally recognised authority in intellectual and developmental disabilities and Prader-Willi Syndrome.
During his presentation, "Understanding Prader-Willi Syndrome: Implications for Intervention and Support", Professor Holland explored how the interplay between environment and biology shapes the experiences of people with Prader-Willi syndrome.
He shared emerging evidence on the causes of hyperphagia in people with Prader-Willi syndrome, and how a deeper understanding can help us co-design more effective, person-centred interventions and supports.
What is Prader-Willi Syndrome?
Prader-Willi Syndrome is a rare, complex genetic disorder caused by loss of function of some the genes on chromosome 15.
The condition can have a significant lifelong impact on individuals and their families and is often characterised by:
- Low muscle tone, challenges with feeding and poor growth early in development
- Strong drive to eat, with resulting health impacts in adulthood
- Behavioural and emotional challenges
- Sleep and hormonal difficulties
- Developmental delays and intellectual disability