Research library

Intellectual disability health research helps us build evidence about the issues and what makes a difference. We use the evidence to help build real-world solutions including policy, clinical models, frameworks, training, and resources.  

Our researchers draw on existing research, data and the voices of those with lived experience, their families, health and disability workers, and advocates.

The research on this page is from researchers at the Centre, our Consortium, and our partners. Together, we aim to make intellectual disability health research and data better to improve health outcomes for people with intellectual disability.

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2026

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A Narrative Review of Inclusive Research Practices

Kelly, M., G.Gallego, S.Anderson, J.Trollor, and M.-A.O'Donovan.
Journal of Policy and Practice in Intellectual Disabilities23, no. 2: e70057. doi.org/10.1111/jppi.70057.

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ASPIRE-Med project: a study protocol on an Australian psychotropic medicines training programme for disability support workers

Barratt M, Speer K, Deb S, et al
BMJ Open 2026;16:e114351. doi: 10.1136/bmjopen-2025-114351

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Supporting the appropriate use of psychotropic medicines in aged and disability care

Macfarlane S, Trollor JN, Koncz R, Sukkar M, Hullick C. (2026)
Aust Prescr 2026;49:4-9. doi.org/10.18773/austprescr.2026.006

 

Centre logo on a dark grey background. Two people figures - one light green and one orange. The words National Centre of Excellence in Intellectual Disability Health to the right of the people figure in white.
Addressing the challenges of intellectual disability identification for health policy and research in Australia

Leonard H, Wong K, Liao P, Khan M, Aitken Z, Bourke J, Trollor JN, Downs J, O’Donovan M-A, Kavanagh AM and Srasuebkul P (2026)
Front. Psychiatry 16:1703991. doi: 10.3389/fpsyt.2025.1703991

 

2025

Centre logo on a dark grey background. Two people figures - one light green and one orange. The words National Centre of Excellence in Intellectual Disability Health to the right of the people figure in white.
Predictors of mental illness onset in adolescents and adults with intellectual disability: A retrospective cohort study in New South Wales, Australia

Michalski, S. C., et al.
Australian & New Zealand Journal of Psychiatry

Centre logo on a dark grey background. Two people figures - one light green and one orange. The words National Centre of Excellence in Intellectual Disability Health to the right of the people figure in white.
Accessibility of Australian government online cancer screening information for people with intellectual disability

Barrington, M., Fisher, K.R., Harris-Roxas, B. et al. (2025)
J Public Health (Berl.) (2025). https://doi.org/10.1007/s10389-025-02426-z

 

Centre logo on a dark grey background. Two people figures - one light green and one orange. The words National Centre of Excellence in Intellectual Disability Health to the right of the people figure in white.
Access to healthcare for people with intellectual disability: a scoping review

Barrington M, Fisher KR, Harris-Roxas B, Spooner C, Trollor JN, Weise J.
Scandinavian Journal of Public Health. 2026;54(2):173-188. doi:10.1177/14034948251317243

 

2024

Centre logo on a dark grey background. Two people figures - one light green and one orange. The words National Centre of Excellence in Intellectual Disability Health to the right of the people figure in white.
The future of preventive health care for people with intellectual disabilities in Australia: an analysis of the Disability Royal Commission’s approach, findings and recommendations

Weise, J., Tracy, J., Fisher, K. R., Ward, J., Hind, T., Adrian, S., … Trollor, J. N. (2024).
Research and Practice in Intellectual and Developmental Disabilities, 11(2), 331–347. https://doi.org/10.1080/23297018.2024.2362646